Friday, December 12, 2008

ASSIST Vasculitis Study Podcast (updated info)

[I received an updated invitation for you from Delesha Miller Carpenter regarding the ASSIST Study. They have added a multimedia podcast that describes the study quite nicely and answers most obvious questions in a rather friendly way. -- Joseph]

from Delesha Miller Carpenter CLICKHERE@email.unc.edu>
date Fri, Dec 12, 2008 at 9:41 AM
subject Vasculitis study podcast

Hello and happy holidays,

I am writing to you because you are listed as a Vasculitis Foundation contact and I wanted to let you know that that I have posted a podcast about the ASSIST Study. Many of you are already participants (thank you!), so if you know of other people living with vasculitis that might be interested in the study, could you please direct them to this link:

http://www.unckidneycenter.org/assiststudy.html

Currently, over 200 people have enrolled in the study and I am hoping to recruit about 85 more vasculitis patients.

Here is more information about the study in case some people cannot access the podcast:

The Accessing Social Support in Symptom Treatment (ASSIST) Study is recruiting persons living with vasculitis to understand how support from different people (spouse/partner, family member, friend, doctor) affects one’s ability to cope and effectively manage vasculitis. This is one of the first studies to investigate the effects of different supportive relationships for vasculitis patients.

To be eligible for the study, patients must have a diagnosis of vasculitis, currently be taking at least one medication to treat vasculitis, be older than 18 years of age, and have access to a computer with internet access. Participants will be asked to complete two confidential online surveys. The first survey should take no longer than 1 hour to complete, while the second survey takes approximately 30 minutes to complete. The surveys ask about how different relationships affect how patients cope with and manage treatment for vasculitis, including medication side effects.

Participants will receive a $10 gift card after completing the second survey.

If you have any questions, please email Delesha Carpenter, MSPH, at dlmiCLICKHERE@email.unc.edu. I can also be reached at 919-966-2561 ext. 302 or toll-free at: 1-866-462-9371.

Thanks so much,

Delesha Carpenter


Project Director
ASSIST and PAIRS Study
3300 Thurston Bowles CB#7280
University of North Carolina
Chapel Hill, NC 27599
Phone: 919-843-9256

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