Friday, January 20, 2012

YOU'RE INVITED: Meet me at Owl Cafe on Sunday January 22 at 1PM

WHO: I am meeting some new members. Mary, plus her son John who is age 14 and diagnosed with
GRANULOMATOSIS WITH POLYANGIITIS (aka WEGENER'S) (aka GPA). I would love to see some of you show up as well.

WHEN: Sunday January 22, 2012 at 1300hrs (1PM)

WHERE: Owl Cafe, 800 Eubank Blvd NE, Albuquerque, NM 87123-1200‎

NOTE: Turns out Deli-Berry is Closed on Sundays.

WHAT: This will be an informal meeting to meet John and get him some information to deal with GPA.

It could also be a chance to catch up with some of you and discuss how this chapter, meaning me, can better meet your needs. I have been focused on the national level for a time, but part of that is because you have been so silent. I hope that means you are doing well.

We also have to discuss the capter meeting schedule. I am inclined to go quarterly, but you should have a say so, don't you think? Speak up! If you cant be there Sunday, talk to me by Email so I know what is going on with you.

What awareness activities would you like to help organize, and then participate in? Speak up!

Would you like me to get a doctor to come talk with you? Then I need your input to figure out the best time. I cannot invite a doctor to a meeting where nobody shows up.

Its time for you to step up and take charge of your condition. Some of you have told me you are willing to help, but it seems you are waiting for me to set something up. I cannot set something up until I know who is willing to help me make it happen. Let's get together and figure this out.

Come one come all to the Jellicle Ball, but leave your cats at home just this once.