Thursday, July 19, 2012

2012 Vasculitis Symposium in Atlanta

Meaghan and I are on our way now to Atlanta to attend the Vasculitis Patient Symposium. Lots to learn, and we look forward to touching base with other patients and caregivers.

Attending a Vasculitis Foundation symposium presents a rare opportunity to swap stories and compare notes with other people who truly know what it means to live with vasculitis.

Plus we get to attend presentations by some of the doctors who are leading the way in vasculitis research. They often present information as much as a year or more before it os published in medical journals. Another reason to go.

Symposia are held every other year, so we save up our reward miles so we can go.

If you have ever felt alone with your condition, consider attending a symposium. Meeting hundreds of other people who know vasculitis will change your perspective.

If you want to take it one step farther, get involved and volunteer. Taking control of things like promoting awareness can actually help you feel better.

Wishing you all well, and I truly mean that,

Joseph Carpenter

Saturday, July 14, 2012

July 2012 Chapter Meeting

Neither I, nor Meaghan, will be able to make it to Deli-Berry today.

I have been travelling and to make up for lost time, I have to attend to a client today.

As a consolation prize, I have made arrangements for any chapter members who do show up to get either a free small yogurt, or a drink. Your preference. Just tell them at the counter you are there for the vasculitis meeting and I will settle up with them later.

Thank you for your understanding,

Looking forward, we will be attending the 2012 Symposium in Atlanta. It was a hard push, but we managed to scrape up enough reward miles to go. If you are also going, please let me know so I know to look out for you in Atlanta!

More information and registration here:
http://www.vasculitisfoundation.org/2012atlantasymposium

If you have never been to a symposium, you should consider attending if you can possibly make it.

The medical instruction is excellent, as evidenced by educational videos posted on the Vasculitis Foundation Education Channel on YouTube:
educationvideos.vasculitisfoundation.org

That collection continues to grow, so keep checking back. In fact, I have three new ones from Cleveland Clinic to post now. I had better make some time to get that done!

In addition to the education aspect, there is no substitute for the kind of support you get when you can meet other patients who have your condition. Even though these conditions are very rare, you might meet a dozen or more people who have your symptoms. You can compare notes on treatment and how you have been handling your condition. That feeling you get of "not being alone" is priceless.

Joseph Carpenter