While the Vasculitis Foundation is all about providing resources to patients, we also want to care for the caregivers. For many patients, their daily struggle is aided by a loved one, or a caring friend who helps them in so many ways. I was introduced to a resource today for caregivers that shows some promise. They have a separate listserv for caregivers, and it is a place to get advice and support from others who will understand the unique role caregivers play in the lives of those with chronic, disabling health conditions.
: Joseph
Family Caregiver Alliance (FCA): FCA is a public voice for caregivers, illuminating the daily challenges they face, offering them the assistance they so desperately need and deserve, and championing their cause through education, services, research and advocacy.
More than 25 years ago, a small task force of families and community leaders in San Francisco came together to create support services for those struggling to provide long term care for a loved one who did not "fit" into traditional health systems: adults with Alzheimer's disease, stroke, Parkinson's, traumatic brain injuries and other debilitating disorders. The diagnoses were different, but the families shared common challenges: isolation, lack of information, few community resources, and drastic changes in family roles.
http://www.caregiver.org/caregiver/jsp/home.jsp
: Joseph
Family Caregiver Alliance (FCA): FCA is a public voice for caregivers, illuminating the daily challenges they face, offering them the assistance they so desperately need and deserve, and championing their cause through education, services, research and advocacy.
More than 25 years ago, a small task force of families and community leaders in San Francisco came together to create support services for those struggling to provide long term care for a loved one who did not "fit" into traditional health systems: adults with Alzheimer's disease, stroke, Parkinson's, traumatic brain injuries and other debilitating disorders. The diagnoses were different, but the families shared common challenges: isolation, lack of information, few community resources, and drastic changes in family roles.
http://www.caregiver.org/caregiver/jsp/home.jsp
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