Monday, September 22, 2008

The Accessing Social Support in Symptom Treatment (ASSIST) Study

From: Delesha Miller Carpenter dlmiCLICKHERE@email.unc.edu
Date: Mon, Sep 22, 2008 at 1:55 PM
Subject: New Mexico support group
To: Karla, Joseph

Hello,

I am writing to you because you are listed as a contact for your area in the Vasculitis Foundation newsletter. I wanted to let you know that there is a new research study at the University of North Carolina Kidney Center, the ASSIST Study, that might be of interest to vasculitis patients in your area.

The Accessing Social Support in Symptom Treatment (ASSIST) Study is recruiting persons living with vasculitis to understand how support from different people (spouse/partner, family member, friend, doctor) affects one’s ability to cope and effectively manage vasculitis. This is one of the first studies to investigate the effects of different supportive relationships for vasculitis patients.

To be eligible for the study, patients must have a diagnosis of vasculitis, currently be taking at least one medication to treat vasculitis, be older than 18 years of age, and have access to a computer with internet access. Participants will be asked to complete two confidential online surveys. The first survey should take no longer than 1 hour to complete, while the second survey takes approximately 30 minutes to complete. The surveys ask about how different relationships affect how patients cope with and manage treatment for vasculitis, including medication side effects.

Participants will receive a $10 gift card after completing the second survey.

If you think patients in your area may be interested in this study, please feel free to forward this email and my contact information to them. I can also mail study brochures to you if you would like to distribute them at an event or support group meeting.

Currently, 130 people have taken the survey and I am hoping to recruit 170 more people, so there is lots of room for enrollment!

If you have any questions, please email Delesha Carpenter, MSPH, at dlmiCLICKHERE@email.unc.edu. I can also be reached at 919-966-2561 ext. 302 or toll-free at: 1-866-462-9371.

Thanks so much,

Delesha Carpenter


Project Director
ASSIST and PAIRS Study
3300 Thurston Bowles CB#7280
University of North Carolina
Chapel Hill, NC 27599
Phone: 919-843-9256

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