Each vasculitis patient has a story.
They are encouraged to share them with each other, and also with the Vasculitis Foundation.
I have noticed that many times vasculitis is such a monumental event in a persons life that the local media takes notice and will publish special interest articles about a patients story.
If you would like to share your story, please do. If you would be willing to be interviewed by local media to have your story published in the New Mexico newspapers, magazines, as well as on radio and maybe television, then your story can help spread awareness about vasculitis.
People will say, “I saw that on the news,“ or ”I read about that in a magazine once.“
We WANT people to talk about vasculitis, so that they will know what to expect if they or their loved one end up with it. We also want them to know about it so they can decide if they would like to help fund new vasculitis research.
On a totally voluntary basis, chapter members are encouraged to share their story and to consider sitting for an interview to help spread the word. The way I look at it, the more people who know, the closer we get to better treatments or a cure.
: Joseph
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