I seem to get more feedback about the NMVasculitis website from people in other parts of the country than I do from anyone living in New Mexico.
HOW ARE YOU GUYS?
I rarely hear from any of you about how you are doing, so I guess I could make more of an effort to reach out to you people. I would like to know. I would like to see you contacting each other more often for support as well. Maybe we should stop going to restaurants and start going to each others houses. I may pass the hosting chore on to you as a baton we can share. Do you think this would encourage more people to participate?
MAILING LIST CHANGES
In the meantime, what was intended to be a sort of "private corner" sits unused unless I send something out. I think one other person has posted besides myself.
So, I am going to make it easier for people to sign up in hopes that a wider audience will come into the circle and contribute their ideas and experiences for the benefit of all. The mailing list will still be moderated, and I will still approve registrations, but I am allowing more people to participate here.
Be aware that with the mailing list changes the online membership will grow, and it may not remain exclusively a New Mexico mailing list. I do not know how many might choose to sign up, but NM Patients will remain the primary focus, so any local articles about our doctors, our hospitals, and how our climate affects you and your vasculitis... are certainly welcome. Please share what you know.
MORE CONTENT PLEASE
I originally hoped the patient members would be more active, and help contribute content to this website by sharing articles they read in the papers, magazines, etc. and relating significant facts they learn from their doctors. It seems people are either shy, or selfish, with this information, and do not feel compelled to share with the group as I thought they might.
I will try to do better myself by reposting the best of what I see in other news groups to keep this venue more interesting.
Last, but by no means least... Please let us know how you are doing!
Joseph Carpenter
Parent, daughter with CSS (DX March '08)
Email, Fax, Phone and Postal mail: http://www.nmvasculitis.org/Home/about-cnmvf/contact
Central NM Vasculitis Foundation Chapter - http://www.nmvasculitis.org
Vasculitis Foundation - http://www.vasculitisfoundation.org
Churg-Strauss Syndrome Association - http://www.cssassociation.org/
Mark Your Calendars for the 2010 All Star Vasculitis Patient Symposium - July 30-August 1, 2010
http://www.vasculitisfoundation.org/2010vasculitis-symposium
Monday, May 17, 2010
May Meeting of NMVasculitis at the Hilton Cantina on University
Our next meeting will be held at 6PM this Thursday, May 20 at the Cantina Lounge in the Hilton Hotel. I believe they have some indoor and outdoor seating, which may work well with the summer months coming up. This venue is centrally located, and also close to the freeway so locals and out of towners alike should find it easy to get off at Menaul and get in there easily.
Phone: (505) 884-2500
Toll Free: (800) 274-6835
Fax: (505) 880-1196
Days Open: Daily Monday - Sunday 2PM-11PM
This should be a welcome change as we had exhausted the menu at McAllisters after several months of staying in one place. I welcome you all to join us this coming Thursday!
Joseph Carpenter
Parent, daughter with CSS (DX March '08)
Email, Fax, Phone and Postal mail: http://www.nmvasculitis.org/Home/about-cnmvf/contact
Central NM Vasculitis Foundation Chapter - http://www.nmvasculitis.org
Vasculitis Foundation - http://www.vasculitisfoundation.org
Churg-Strauss Syndrome Association - http://www.cssassociation.org/
Mark Your Calendars for the 2010 All Star Vasculitis Patient Symposium - July 30-August 1, 2010
http://www.vasculitisfoundation.org/2010vasculitis-symposium
Cantina Lounge
Have a favorite beverage while enjoying a light snack under the blue skies of New Mexico. Lounge offers food specials and refreshing drinks in a tree-lined courtyard overlooking our pool. Local favorite.
La Cantina Menu
Have a favorite beverage while enjoying a light snack under the blue skies of New Mexico. Lounge offers food specials and refreshing drinks in a tree-lined courtyard overlooking our pool. Local favorite.
La Cantina Menu
Location: Midtown/University
1901 University Blvd. N.E.
1901 University Blvd. N.E.
Albuquerque, NM 87102
Phone: (505) 884-2500
Toll Free: (800) 274-6835
Fax: (505) 880-1196
Days Open: Daily Monday - Sunday 2PM-11PM
Attire: Casual
This should be a welcome change as we had exhausted the menu at McAllisters after several months of staying in one place. I welcome you all to join us this coming Thursday!
Joseph Carpenter
Parent, daughter with CSS (DX March '08)
Email, Fax, Phone and Postal mail: http://www.nmvasculitis.org/Home/about-cnmvf/contact
Central NM Vasculitis Foundation Chapter - http://www.nmvasculitis.org
Vasculitis Foundation - http://www.vasculitisfoundation.org
Churg-Strauss Syndrome Association - http://www.cssassociation.org/
Mark Your Calendars for the 2010 All Star Vasculitis Patient Symposium - July 30-August 1, 2010
http://www.vasculitisfoundation.org/2010vasculitis-symposium
Tuesday, May 11, 2010
Rituximab - Rheumatoid Arthritis Drug Lowers Flu Shot Effectiveness
Rheumatoid Arthritis Drug Lowers Flu Shot Effectiveness - Drugs.com MedNews
Rheumatoid Arthritis Drug Lowers Flu Shot Effectiveness
MONDAY, Jan. 11 -- New research offers a caution to rheumatoid arthritis patients who take the drug rituximab (Rituxan): The flu vaccine is safe, but it's ineffective during the first six months following treatment with Rituxan.
The researchers also found that previous flu vaccination does help provide some protection against the flu, and the vaccine won't make the arthritis symptoms worse.
The study findings are published in the January issue of Arthritis & Rheumatism.
Tuesday, April 13, 2010
NMVasculitis April Meeting at McAllisters
Looks like we will keep the monthly meeting at McAllisters in Uptown this month.
Thursday, April 14th at 6PM.
I will be there. I hope to see you there as well. Come by and I will treat you to some sweet tea.
We can also discuss what this chapter will be able to accomplish for awareness week.
Come one come all to the Jellicle Ball... or something like that.
Details to the location on the Meetings page of the website.
: Joseph
Thursday, April 14th at 6PM.
I will be there. I hope to see you there as well. Come by and I will treat you to some sweet tea.
We can also discuss what this chapter will be able to accomplish for awareness week.
Come one come all to the Jellicle Ball... or something like that.
Details to the location on the Meetings page of the website.
: Joseph
Tuesday, March 2, 2010
Cases of H1N1 Have Dwindled, Seasonal Flu Has Been a No-Show
The Flu Season That Fizzled - WSJ.com
http://tinyurl.com/yhkeuwb
The Flu Season That Fizzled
Cases of H1N1 Have Dwindled, Seasonal Flu Has Been a No-Show and Doctors Wonder Why
By BETSY MCKAY
[flu]
This has been a flu season like few others.
Normally at this time of year, influenza is rampant in the U.S., prompting hundreds of thousands of people to stay home in the dead of winter with fever, aches and pains.
Now, after raging through college campuses and communities last summer and fall, cases of the new H1N1 swine flu virus have dwindled to a trickle, and run-of-the-mill seasonal flu has barely made an appearance. Not one state reported widespread flu illness to the Centers for Disease Control and Prevention for the week ended Feb. 20, the latest data available. The percentage of all doctors' visits by patients with influenza-like symptoms has dropped from a high of 7.8% in late October—the largest peak since the agency began surveillance in 1997—to 1.8% in late February, well below the norm for flu season."
To read more, read the full article at the Wall Street Journal website.
The Flu Season That Fizzled - WSJ.com
http://online.wsj.com/article/SB10001424052748703429304575095743102260012.html?mod=rss_Today%27s_Most_Popular#printMode
http://tinyurl.com/yhkeuwb
The Flu Season That Fizzled
Cases of H1N1 Have Dwindled, Seasonal Flu Has Been a No-Show and Doctors Wonder Why
By BETSY MCKAY
[flu]
This has been a flu season like few others.
Normally at this time of year, influenza is rampant in the U.S., prompting hundreds of thousands of people to stay home in the dead of winter with fever, aches and pains.
Now, after raging through college campuses and communities last summer and fall, cases of the new H1N1 swine flu virus have dwindled to a trickle, and run-of-the-mill seasonal flu has barely made an appearance. Not one state reported widespread flu illness to the Centers for Disease Control and Prevention for the week ended Feb. 20, the latest data available. The percentage of all doctors' visits by patients with influenza-like symptoms has dropped from a high of 7.8% in late October—the largest peak since the agency began surveillance in 1997—to 1.8% in late February, well below the norm for flu season."
To read more, read the full article at the Wall Street Journal website.
The Flu Season That Fizzled - WSJ.com
http://online.wsj.com/article/SB10001424052748703429304575095743102260012.html?mod=rss_Today%27s_Most_Popular#printMode
Thursday, February 18, 2010
NMVasculitis February Chapter Meeting Tonight
There is a meeting schedule for tonight at 6PM, at McAllisters Deli.
However, due to another commitment, neither Meaghan or I will be able to attend.
Consider this meeting cancelled if you like, or go anyway and look around to meet new people on your own.
Worst case, you can have some dessert and enjoy yourself. You deserve a treat, don't you think so?
Since I accidentally held an extra meeting in January, I suppose I am still up to date.
More later. Gotta run.
Joseph Carpenter
Parent, daughter with CSS (DX March '08)
Central NM Vasculitis Foundation Chapter
See us on the web: http://www.nmvasculitis.org - http://www.vasculitisfoundation.org
Or, call Joseph Carpenter at (505) 255-1366 for more information.
Mark Your Calendars for Vasculitis Awareness Week - April 25 thru May 1, 2010 when we all come together for a single purpose -- to raise awareness.
https://www.vasculitisfoundation.org/teamvasculitis
However, due to another commitment, neither Meaghan or I will be able to attend.
Consider this meeting cancelled if you like, or go anyway and look around to meet new people on your own.
Worst case, you can have some dessert and enjoy yourself. You deserve a treat, don't you think so?
Since I accidentally held an extra meeting in January, I suppose I am still up to date.
More later. Gotta run.
Joseph Carpenter
Parent, daughter with CSS (DX March '08)
Central NM Vasculitis Foundation Chapter
See us on the web: http://www.nmvasculitis.org - http://www.vasculitisfoundation.org
Or, call Joseph Carpenter at (505) 255-1366 for more information.
Mark Your Calendars for Vasculitis Awareness Week - April 25 thru May 1, 2010 when we all come together for a single purpose -- to raise awareness.
https://www.vasculitisfoundation.org/teamvasculitis
Thursday, January 21, 2010
NMVasculitis Chapter January Meeting , for real this time
Here is the deal.
Last week, we went to McAllisters Deli in Uptown, and held a meeting. I have been swamped lately with work, and coaching, and so I guess I got ahead of myself, so count that an extra meeting.
Tonight is actually the third Thursday, and tonight January 21st is the date marked on the calendar. So, I will go again tonight. However, I will likely only stay about a half hour, drink some sweet tea, maybe have some pie. Then if you show up, we can have a meeting. If not, then I will go on home after 6:30PM. Be there or be square.
Fair enough?
I really do hope to see you there, so come if you can.
Need directions? Check this out...
Joseph Carpenter
Parent, daughter with CSS (DX March '08)
Email, Fax, Phone and Postal mail: http://www.nmvasculitis.org/Home/about-cnmvf/contact
Central NM Vasculitis Foundation Chapter - http://www.nmvasculitis.org
Vasculitis Foundation - http://www.vasculitisfoundation.org
Mark Your Calendars for Vasculitis Awareness Week - April 25 thru May 1, 2010
when we all come together for a single purpose -- to raise awareness.
Last week, we went to McAllisters Deli in Uptown, and held a meeting. I have been swamped lately with work, and coaching, and so I guess I got ahead of myself, so count that an extra meeting.
Tonight is actually the third Thursday, and tonight January 21st is the date marked on the calendar. So, I will go again tonight. However, I will likely only stay about a half hour, drink some sweet tea, maybe have some pie. Then if you show up, we can have a meeting. If not, then I will go on home after 6:30PM. Be there or be square.
Fair enough?
I really do hope to see you there, so come if you can.
Need directions? Check this out...
Meetings (NMVasculitis.org)
http://www.nmvasculitis.org/Home/support/meetings
Joseph Carpenter
Parent, daughter with CSS (DX March '08)
Email, Fax, Phone and Postal mail: http://www.nmvasculitis.org/Home/about-cnmvf/contact
Central NM Vasculitis Foundation Chapter - http://www.nmvasculitis.org
Vasculitis Foundation - http://www.vasculitisfoundation.org
Mark Your Calendars for Vasculitis Awareness Week - April 25 thru May 1, 2010
when we all come together for a single purpose -- to raise awareness.
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