Showing posts with label technology. Show all posts
Showing posts with label technology. Show all posts

Wednesday, November 10, 2010

Our next chapter meeting may be online as well as at Deli-Berry



[To view this video, you have to look at this post online in a web browser. Email probably will not play the video. I have been told the microphone for this webcam (Logitech HD Pro Webcam C910) is very sensitive so if this sounds loud to you, feel free to use the volume control in the video player to adjust it according to your preferences. Also, this video is hosted in my SmugMug account, so if you have a video you would like to 'share with the class', please send it to me and I can host it for you privately.]

I am figuring out some new webcam technology, so I may either record some stuff at the meeting, and then later post it, or if I can get WiFi, the webcam, etc, all working, I may broadcast the meeting itself in Skype, Google Voice, or whatever works.

This technology exists, so it would be silly not to try and use it. At least that is how I see it.

This is great news for Bonnie in Taos, if she can tune in, and Jamie, who lives in Las Vegas, plus a few in Albuquerque who find it hard to come to the meetings in person, but might be able to participate remotely.

The next meeting is on Thursday, November 18th at 6PM. The location for Deli-Berry is 2520 Juan Tabo Blvd NE. On Juan Tabo, just north of Menaul Blvd NE, on the right hand side. You will see the Deli-Berry sign, and it is located in between a Sprint store and FedEx Office.

Most likely, I will try to braodcast the meeting in Skype, so to participate you will need a free account, and possibly a headset and/or a webcam. Once you have a Skype account, send me an Email with your Skype ID and I will send you my Skype ID in reply.

Here is some information about headsets and webcams, assuming you do not already have this equipment already installed on your computer.

If you have a newer MacBook, or pretty much any really new laptop, you may already have a webcam built in. In most cases, Skype will find it and use it automatically. But since I cannot possibly support all of the possible variables, you are going to have to sort that out. You may also find that an external webcam gives you better quality. The MacBooks are pretty good, but all others you will have to try them to find out.

Here is what I know...

For a headset only, you can do much worse than a Logitech ClearChat Comfort USB Headset (Black). Sample prices:

  • $31.99 on Amazon.com
  • $33.44 at Sears
  • $37.88 at Walmart
  • $39.99 at Target

There are other brands, like Plantronics for example, that are also dandy, but I am familiar with Logitech, so that is why I choose mention them. go to a store and compare for yourself. Try them on, and see what fits better for you.

USB connection gives you easy setup and great sound quality. Mostly, you just plug it in and it works. You may need to tell some software which microphone or headset to use, but it is pretty straighforward.

WHY NOT GO ALL THE WAY WITH A WEBCAM?

Or for practically the same money, you can go for the full boat with a web camera.

I am a big advocate for all vasculitis patients to get some kind of camera to record their stories as a way of spreading awareness. Just tell the camera the cleaned up version of what you tell your friends and family. It will go a long way towards making the public more willing to contribute time and money for this worthy cause.

But which camera?

I did a lot of research, and many cameras will work well. I personally like the Logitech cameras, because their is a nice A great compromise between quality and affordable price, plus I like how easy their software was to install.

Prices vary depending on how good you want the camera to be.

For most people I recommend the Logitech C310 HD Webcam. Again, good picture, good sound, and a good price. There are more expensive models, but this one will do the job quite nicely with very few compromises. Sample prices:

  • $39.99 at BestBuy
  • $41.99 at Amazon.com
  • $49.99 at Office Depot
  • $52.98 at Staples

Just as with the headsets, there are other brands that are also good, like Microsoft webcams are pretty good. I just choose to promote Logitech because I am familiar with them, they are easy to set up, and I like the software.

If you want to mimic my research, to see the quality differences, try starting with the webcam reviews at http://cowboyfrank.net/webcams/index.htm

He puts a number of different cameras through their paces. His most recent reviews are dated September 26, 2010, so they are not too old.

After doing the research, I like Logitech best. I chose that to give webcams to my family so we could all be on the same software as well. The Logitech Vid software is pretty nice and makes connecting a snap.

The webcam will work with any application that calls the camera and/or the microphone.

  • Google Voice/Video Chat
  • Skype
  • Logitech Vid software (Free to download and can be used with any webcam.)
  • Microsoft Live
  • Yahoo Messenger
  • etc, etc, etc, yadda yadda yadda

They all pretty much will work with most any USB webcam.

These better Logitech microphones, like on the C310, are noise cancelling, so you can use them to talk to people hands free instead of using a headset. You just turn down the volume enough to stop the feedback, then you can still hear the other party easily, and they can hear you too.

You can turn the camera part on and off as you choose. You get to turn that on and off in the software. Logitech software even has a feature to allow you to put a picture of your chooseing in place of a live camera feed. Handy for those days when you just don't want to be on camera, but still want to talk with people. Or when you want to turn the camera off for a few minutes to do something off camera, but still hear the other persons voice.

These are great tools for keeping people in touch, and at these prices, most people can afford them. In some ways, since the long distance over the Internet is free, you almost cannot afford not to take advantage of this technology to stay in touch with distant friends and relatives.

I am not trying to tell you what to do, but I will encourage you to share what you know.

Joseph Carpenter
Albuquerque Chapter Leader
Vasculitis Foundation in New Mexico

Thursday, April 16, 2009

Brainstorming the Ultimate Vasculitis Knowledge Base

So, what if there were one place, where all the known good information about vasculitis were indexed, with summary articles to help you understand what the significance was to your condition? What might that be worth to the vasculitis community?

There are people in the vasculitis community talking about this very concept now. I am one of them. How to collect all this information, from so many sources, and review it so that only the most pertinent information makes it into the knowledge base, and even that is checked for relevance and accuracy.

Who is going to find all this information? It would take an army.

Or, maybe the collective computing power of the entire vasculitis community. That means you could help as much as anyone. Every patient has some kernel of knowledge that is not shared by the others. By sharing what you know, you are helping others as you help yourself.

There are many competent people out there now, looking for good information. They are starved for it so that they can treat or support a vasculitis condition. Okay, so what if we give them a place to put all their hard work? What if we let them contribute to a moderated WIKI so that the power of the many can work for the benefit of the one, and the power of the one, can work for the benefit of the many...

Sound like chaos?

Not necessarily. It has already been done. Wikipedia is just such a project. World editable, the mother of all wikis has become one of the GO TO sources of information for just about any topic one can imagine. The collective information power of all the people who contribute to the Wikipedia Project is immense.

Wikipedia is also subject to vandalism. What if we had a Vasculitis WIKI, and some moron could go in at any time and change "Methotrexate," to "Monkey Toothpaste." Well, that would not be a good thing. It would not even be funny... or not really very funny. Well, whether or not it was funny would depend on the context, would you not agree? :o)

Something as important as a Vasculitis WIKI would need to be moderated. That means that the world full of regular folks could write stuff, but it would have to pass muster from a team of moderators before getting published. It could also be gone over by a cadre of editors to glean out the typos, and misstatements, before going live on the world wide web.

Why just the other day, I said "this weekend" to a group I was addressing, when I meant to say "next weekend." One little word change and it could have meant a lot of people upset at me for driving all the way across town one week early. I mean if they had enough camping gear it might have worked out that they could wait it out, but really, that was not going to work.

My point is one little word can make a difference, so we cannot allow just anybody to hit the publish button. Really no one person should be able to do that. There should be at least two people approve something before it is considered good enough to print.

How then to discriminate between the threshers and the bailers? The threshers collect the wheat, leaving the chaff on the ground. The bailers bundle it all up and take it to market. This analogy is missing one job, the quality inspectors. A team of knowledgeable people. Medical doctors for some of the information, and experienced vasculitis patients and caregivers for other types of information. We might even recruit some crafty nurses to help too. Those nurses know stuff.

The system is fed information by the hundreds, thousands of people out there on the Internet just researching away about vasculitis. When they come across something they think is worthwhile, they submit the information to the project.

Then, some one of several people gets it, takes a look, and if it looks like something, they post it as a stub article, or attach it to an existing stub article for inclusion in a future update.

At some point a person with writing ability gets involved. They study the information, maybe do some additional research to confirm a few things, then write up a summary article to introduce the information. That summary could be a simple paragraph, or it could be a condensation of the original. That part would vary depending on the length and complexity of the summary. It would also depend on the copyrights attached to the information being summarized.

Once the summary writing finishes his or her bit, then the summary article would be up for review. Other editors in the project would try to improve it, or they would give it a pass after making sure it was not poorly done or that it duplicated other articles too closely.

With at least two people giving it the green light, the summary article, and the attendant information would be published to the WIKI for consideration as a resourse for and by the larger vasculitis community.

If we get enough of these articles, and do this for a while, then we could have the definitive source of known good information about vasculitis.

That is what some of us are talking about...

What do you think? Your comments will help guide this proposed idea.

Let me have it. Send me Email.

Joseph Carpenter
Email
Parent, daughter with CSS (DX March '08)

Central NM Vasculitis Foundation Chapter
See us on the web: http://www.nmvasculitis.org - http://www.vasculitisfoundation.org



Monday, September 22, 2008

VF Webinar was troubled, but worthwhile

The first ever webinar with three of the foremost experts on vasculitis was held today.

The talks by Dr. Peter Merkel, and Dr. Carol Langford were abbreviated due to technical difficulties. The talk by Dr. Ulrich Specks was complete and was excellent. The Q&A session was preempted because of time constraints resulting from earlier technical issues.

Sure, there were some technical difficulties, but it is important to keep the eye on the prize. Next time it will be better.

In a few days, those who registered for this webinar will get an Email with links to either a live rebroadcast of the webinar, or a downloadable link of the full presentation.

Stay tuned and be patient folks. This was a first, and when using technology, the first time is usually a bumpy ride. The organizers will iron out the kinks and next time will be better.

Now, on to other things...

: Joseph Carpenter
Albuquerque, NM
CSS Parent, Daughter DX March '08
Celebrating six months without symptoms!
Central NM Chapter - Vasculitis Foundation
http://www.nmvasculitis.org

Tuesday, September 2, 2008

About Google Health

Google Health is very promising new service that could be a great benefit to all patients and doctors. It is still developing, but worth taking a look.

"Google Health allows you to store and manage all of your health information in one central place. And it's completely free. All you need to get started is a Google username and password.

Google believes that you own your medical records and should have easy access to them. The way we see it, it's your information; why shouldn't you control it?"

This service went live at the beginning of summer 2008, after years of beta testing. It is still being developed as doctors slowly buy into the idea. I am using it to a limited extent, and may use it more as new providers become available.

It is worth considering, because whether it be this solution or some other technology, centralized online medical records that are under the patients control is an idea whose time has come. More than come... As vasculitis patients and caregivers, we should be demanding it loudly.

For more information, check out: http://www.google.com/intl/en/health/about/