Showing posts with label 2010. Show all posts
Showing posts with label 2010. Show all posts

Thursday, December 16, 2010

December Meeting CANCELLED due to freezing roads

Sorry for the very short notice folks.

I am stuck in another commitment across town. Meaghan was going to cover the meeting tonight, but the roads here are icing up early, so I told her to stay home. There are a few brochures at Deli-Berry, and I am going to arrange with the owners so anyone who shows up tonight can get a small yogurt on me for showing up.

The best advice I have for you is stay home, be safe, and try to come to the next meeting on January 20, 2011.

If you need information or support, contact me by Email through the website, or call me by clicking the Call Me button on the blog or in the website. That button will connect you with me anytime, or if I am not available that moment, you will get my voicemail so I can call you back. I can also meet you online for an online meeting if you have a webcam. Just contact me to set up a good time.

See you all in January. Call me anytime you have any questions at all, or when you get ideas for awareness events out chapter can do together.


--
Joseph Carpenter
Parent, daughter with CSS (DX March '08)
New Mexico Chapter Leader

Email, Fax, Phone and Postal mail: http://www.nmvasculitis.org/Home/about-cnmvf/contact
Central NM Vasculitis Foundation Chapter - http://www.nmvasculitis.org
Vasculitis Foundation - http://www.vasculitisfoundation.org

Saturday, November 20, 2010

November Meeting Wrap-Up



Vasculitis Foundation in New Mexico
Albuquerque Chapter Meeting
November 18, 2010
Deli-Berry Restaurant

Present:
Joseph C. (CSS family)
Meaghan C. (CSS patient)
Dennis W. (WG patient)
Rupal P. (Family - WG suspected, mother still undiagnosed)
William C. (CSS family by telepresence in Skype)

We met at Deli-Berry. When I arrived, Dennis and Rupal had already introduced themselves and were busily sharing information. Rupal mother is still undiagnosed with a pending Wegeners diagnosis.

I initialized Skype and called William, who had indicated an interest in joining this months meeting. He remained connected throughout the meeting and as the only remote participant, he was able to use video and text chat. With multiple recipients, only voice connections are possible.

Most of the meeting was spent sharing links to sites that are already available on the Education page of www.nmvasculitis.org. We discussed the usefulness of www.uptodate.com, for those who can get access. Recent changes to that site allow for temporary memberships, so it is now affordable to most anyone. Rupal has two family members who are physicians, so she sends them the links for which she wants full text, and they send her the information.

We all shared the names of a few doctors, and a huge oversight was corrected. We learned that NM Arthritis Associates has several rheumatologists on staff who are already familiar with vasculitis. Those names will be added to the list soon. William used to be a board member for the NM Arthritis Foundation, so he and I may have more to talk about in terms of learning from that experience to advance the efforts of this chapter.

You are all encouraged to share the names of your good doctors who know about vasculitis on the Vasculitis Doctors Form. When you do, those names are made available to benefit other patients. If you do, then others will be more likely to also share and you will likewise benefit. So, sharing information is in your best interest.

Joseph discussed that it would be nice if access to full text articles was a membership benefit for paid membership to the Vasculitis Foundation. Then also placing them in an corss-indexed structured, database, like a WIKI. Imagine being able to search through articles on any topic that interested you. Just an idea at this point but leveraging the army of members to find and submit links and articles, then having it peer reviewed to validate the information. What a lofty but also worthwhile goal.

We did Skype at the meeting between about 6PM and 8PM. One person Skyped in and was able to participate more or less fully with the meeting.

I will use that technology again at the next meeting. You may also can find me in Skype from time to time. I am more often online in Google, but have access with Google, AOL, Skype, Yahoo, and even ICQ.

There were five at the meeting, including one remotely. Which was awesome.

Thursday, September 9, 2010

I need your stories, so I can make money for vasculitis research

If you follow the news for the Central NM Chapter of the Vasculitis Foundation, then you may recall I mentioned back in August that we have a unique fundraising opportunity coming up.

http://nmvasculitis.blogspot.com/2010/08/haley-is-feeling-better-meeting-tonight.html
"AWARENESS AND FUNDRAISING EVENT COMING UP NEXT MONTH
=====================================================
In other news, on September 21st, our chapter will be represented at the kickoff picnic for a federal fundraising effort. The Combined Federal Campaign (CFC) was started in 1961 by President John F. Kennedy and is the only authorized solicitation of employees in the federal workplace for charitable organizations."

With very little commitment and time, I, and one or two of you who may volunteer to go with me, will attend the Kick Off for the 2010 Combined Federal Campaign (CFC). This will give us the chance to personally represent the face of vasculitis to hundreds, or potentially thousands of federal employees who come to the kick off to decide how they are going to allocate their charitable donations. It is a sure winner, but only if we convince them that vasculitis is a cause worthy of their support.


You can help me help you by sharing your words with me. Simply write me a letter detailing your personal vasculitis story. The same story you must have told a thousand times. Tell me how you first knew you were sick, how you were diagnosed, and include some highlights, both good and bad, about that experience. 


If you feel really generous, speak to the donors in your own voice and tell them why you think they should support research into vasculitis. If you optionally choose to share a photo, then I can add that to our display to show them there are real people affected by these terrible conditions.


If you know a friend or family member who has vasculitis, you can tell your version of their story. That will be good to show how vasculitis changes more lives than people realize.


I will read your stories, and without giving away your identity at all, I can use your stories to make sure we have plenty to say about vasculitis patients in New Mexico.


Even a few paragraphs will be very helpful. Do not hesitate, share your story today!


Some of you have told me your stories at a chapter meeting, but I need it in writing so I can get in my head good. That way the stories will be ready when I am standing there asking people to support vasculitis research. I want them to contribute, so that you can someday enjoy improved treatments, and hopefully also a cure.


Please send your stories to Joseph Carpenter by Email, Fax or Postal Mail. By jet plane or slow moving mule train.  I will be doing more of these events, so if you don't get to it now, please get to it eventually. I will speak as the voice for those of you who cannot speak for themselves.


--
Joseph Carpenter
Parent, daughter with CSS (DX March '08)
New Mexico Chapter Leader

Email, Fax, Phone and Postal mail: http://www.nmvasculitis.org/Home/about-cnmvf/contact
Central NM Vasculitis Foundation Chapter - http://www.nmvasculitis.org
Vasculitis Foundation - http://www.vasculitisfoundation.org

Tuesday, August 3, 2010

Awareness Idea: Gift cards

What if every vasculitis advocate (patient, family, caregivers, friends) carried with them a booklet with half off coupons for some national chain, like Target, or Subway, or whomever the partnership can be set up with.

Then when they have the vasculitis talk with some new person, they have an immediate way to raise funds for vasculitis with them, right there on the spot.

Ideally, these coupons require someone to put their name and contact information so we can send them more information about vasculitis later as a follow up. But the coupon itself is immediately redeemable, so there is an immediately useful reason for them to buy the coupons.

The advocate submits the money as a donation to the VF, and collectively we might be able to raise an additional several thousand dollars.

I need to share this idea with Bob Sahs, the new Vasculitis Foundation Board President.

I will get back to you guys if this pans out.

-- 

--
Joseph Carpenter
Parent, daughter with CSS (DX March '08)
New Mexico Chapter Leader

Thursday, July 29, 2010

Hello from Long Beach!

At least two of us from New Mexico are here in Long Beach California to attend the 2010 All-Star Vasculitis Patient Symposium.

They say a picture is worth a thousand words, so I recorded a short intro video. If that works out, I may post more videos.



We will bring back some new information with us. You can expect to see that at future monthly meetings of the NM Chapter of the Vasculitis Foundation.

More later,

Joseph Carpenter

Monday, July 12, 2010

Public Transport options in Long Beach CA

I realize not everyone is going to be able to attend the symposium, but I will be sharing links to this with other people, so bear with me here.

If you are going to Long Beach CA at the end of the month, you would want to know how to get around. Here are some public transport options to get you all around the town:


Getting Around

Long Beach Transit
Long Beach Transit operates a Transit Information Center at 130 E. 1st Street, Southeast corner of 1st Street & Pine Avenue in the Long Beach Transit Mall.

http://www.lbtransit.com/services/passport.aspx

Telephone Information
Your friendly Transit Advisors are only a phone call away. Call Monday - Friday, 7AM to 6PM, and Saturday, 8AM to 3PM. We are close on holidays. Telephone information offers you:

Transit trip planning
Customer relations
Long Beach Transit Main Office
The administration office is located at 1963 E. Anaheim Street in central Long Beach. Telephone number: (562) 591-8753. Office hours are 8 a.m. to 5 p.m. Monday through Friday.

Operator Assistance
562-591-2301
Monday-Friday
7 a.m. to 6 p.m.
Saturday-Sunday
9 a.m. to 6 p.m.
Closed on Sundays & Holidays




Dial-A-Lift
Long Beach Dial-A-Lift is a curb-to-curb, shared ride transit service exclusively for the mobility impaired residing in and travelling throughout the cities of Long Beach, Lakewood and Signal Hill.

Who is Eligible for Dial-A-Lift Membership?
Residents of Long Beach, Lakewood or Signal Hill, who are at least 18 years of age, permanently mobility impaired and unable to board or access the Long Beach Transit fixed route bus system are eligible to apply for Dial-A-Lift membership. Persons must be able to wait at a curb up to 30 minutes. Gurney or door-to-door services are not provided by Dial-A-Lift.

More information:
http://www.lbtransit.com/Services/Dial-A-Lift.aspx

Call 562-591-8753 for your Dial-A-Lift Application

Tuesday, July 6, 2010

Reminder: NMVasculitis Chapter Meeting on July 15th at 6PM

We will once again go to The Range Cafe:

The Range Café
2200 Menaul NE, Albuquerque, NM
(505) 888-1660

For more information about this location, see the Meeting page of the chapter website:


This will be our final meeting before Meaghan and I travel to Long Beach, CA at the end of the month to attend the 2010 All Star Vasculitis Patient and Physician Symposium. Huge amounts of knowledge are available at this event from physicians, patients, and caregivers. If you really want to get a handle on your condition, this is one of the best ways to make that happen.

I extend a special invitation to any one who also plans to attend this conference. We could all meet for lunch, or at least we should be able to recognize each other while we are there. I will be the very tall guy handing out NM Chapter brochures and taking lots of notes! :o)

Or, you can come to our monthly meetings and propose a list of questions. I will write them down and try to get you some answers. If you cannot come to a meeting, send your questions to me via Email or post them to the group via our Google Groups list. Putting your questions out there is the first thing you can do to seek an answer.

Hope to see you at the next meeting!

Joseph Carpenter
NM Chapter Leader and chief dishwasher.

Tuesday, June 29, 2010

Still time to make plans to attend 2010 Vasculitis Patient Symposium

http://www.vasculitisfoundation.org/2010vasculitis-symposium

Symposium Logo
 
First Time in Western USA, Leading Vasculitis Experts and Patients to Assemble for Vasculitis Foundation Symposium
 
All Star Vasculitis Symposium, in Long Beach, California
 
July 30 - August 1, 2010
 
 Register Today!
 
 Excellent Opportunity to Learn About the Latest Research Findings and Treatment Recommendations for Over 15 Forms of Vasculitis
 
I attended vasculitis symposiums in Cleveland and Baltimore. I found them both to be very organized, educational, and informative. Seeing so many volunteers and doctors give so much of their time, made it very gratifying for me. I understood that a lot of people care and I am not alone in my vasculitis journey. -- Mercy LaVilla, diagnosed with PAN in 1999, remission in 2005
 
Wealth of Knowledge in One Place
 
The All Star Vasculitis Symposium will be held July 30 - August 1, 2010 at the beautiful Westin Long Beach Hotel in Long Beach, California. This is the first Vasculitis Foundation symposium held in the western USA. 
 

Five Reasons to Attend
 
1. Benefit from the knowledge and experiences of attendees at the world's largest meeting of vasculitis patients, family members and medical experts

2. Expand your disease knowledge by learning about treatment advances, research, quality-of-life issues, and integrative medicine 
 
3. Connect with other vasculitis patients and families for fun and fellowship

4. More than 35 sessions covering all 15 forms of vasculitis, presented by world-renowned experts

5. Network opportunities bring hope, encouragement, and empowerment

Still Not Convinced? 
See the list below of presentations and speakers scheduled to date.
 

General Sessions 

Vasculitis 101 - Overview of Vasculitis and the Individual Diseases
Introduction:  Vasculitis, a family of diseases, how do they relate to each other? Peter A. Merkel, MD, MPH, Director, Vasculitis Center, Boston University School of Medicine

Churg Strauss Syndrome, Microscopic Polyangiitis, Wegener's granulomatosis 
Luis Felipe Flores-Suárez, MD, Head, Primary Systemic Vasculitides Clinic
Instituto Nacional de Enfermedades Respiratorias


Giant cell (Temporal) Arteritis, Polymyalgia Rheumatica, Takayasu's Arteritis, Central nervous System Vasculitis
Cornelia Weyand, MD, PhD, Immunology and Rheumatology, Stanford University

Cryoglobulinemia, Henoch-Schönlein purpura, Polyarteritis nodosa, Secondary VasculitidesPhilip Seo, MD, Co-Director, The Johns Hopkins Vasculitis Center

Ask the Experts Q&A Panel
Drs. Merkel, Flores-Suárez, Weyand and Seo
  
Vasculitis and Our Pediatric Patients and Their Parents 
Join parents and young patients as our pediatric vasculitis experts discuss the management and most current treatment options for younger patients. Attendees will be able to ask questions, meet other parents/patients, share experiences, concerns, and what works for them.
Andreas Reiff, MD, Head, Division of Rheumatology, Childrens Hospital Los Angeles
David Balfe, MD, Medical Director, Pulmonary Stepdown Unit, Cedars-Sinai Medical Center 
New and Emerging Therapies in Vasculitis
Welcome and Introductions

Peter A. Merkel, MD, MPH, Director, Vasculitis Center, Boston University School of Medicine

Understanding Immunology for the Patient with Vasculitis
Paul A. Monach, MD, PhD, Vasculitis Center, Boston University School of Medicine

What's Happening Now in Vasculitis Clinical Research:  The Vasculitis Research Clinical Research Consortium (VCRC), the European Vasculitis Study Group (EUVAS) and other Vasculitis Research Programs 
Peter A. Merkel, MD, MPH, Director, Vasculitis Center, Boston University School of Medicine 
Recently Completed Clinical Trials in Vasculitis and Implications for all Patients: 
Rituximab (RAVE Trial results)
Ulrich Specks, MD, Division of Pulmonary and Critical Care, Mayo Clinic
 
Other Therapeutic Advances 
Carol A. Langford, MD, MHS, Director, Cleveland Clinic Center for Vasculitis Care and Research  
Ask the Experts Q & A Panel
Drs. Langford, Merkel, Monach and Specks

Small Vessel Vasculitis
For attendees interested in Wegener's granulomatosis, microscopic polyangiitis, Churg Strauss syndrome, relapsing polychondritis, Henoch-Schönlein purpura, polyarteritis nodosa, cryoglobulinemia, vasculitis associated with connective tissue diseases), central nervous vasculitis, Behcet's disease, and other small vessel diseases.

Standard of Care Therapy for Small Vessel Vasculitides
Paul A. Monach, MD, PhD, Vasculitis Center, Boston University School of Medicine 

Dealing with the Chronic Medical Effects of Small Vessel Vasculitides 
Philip Seo, MD, Co-Director, The Johns Hopkins Vasculitis Center 
Ask the Experts Q & A Panel Drs. Seo and Monach
Large Vessel Vasculitis For attendees interested in Takayasu's arteritis and Giant cell arteritis (Temporal arteritis)

Standard of Care Therapy for Large Vessel Vasculitides 
Cornelia Weyand, MD, PhD, Immunology and Rheumatology, Stanford University 
Dealing with the Chronic Medical Effects of Large Vessel Vasculitides
Curry Koening, MD, MS, Division of Rheumatology, University of Utah

Ask the Experts Q & A Panel Drs. Weyand and Koening

Breakout Sessions Ear/Nose/Throat in Vasculitis 
Robert S. Lebovics, MD, F.A.C.S., Otolaryngology/Head & Neck Surgery, New York City, New York
Matthew L. Finerman, MD, Otosurgical Group, Medical Clinic, UCLA
 
Family, Friends and Caregivers Support Meeting (please, no patients) 
Donna Benton and Claudia Ellano-Ota, LCSW
Orange Caregiver Resource Center, California, St. Jude Brain Injury Network


Gastrointestinal Issues in Vasculitis 
Kenneth Warrington, MD, Division of Rheumatology, Mayo Clinic, Rochester, Minnesota 
Kidneys in Vasculitis 
Patrick Nachman, MD, University of North Carolina Kidney Center, Chapel Hill, North Carolina
Ramnath Dukkipati, MD, Medical Director, Interventional Nephrology, Harbor-UCLA 

Pharmacology 
Christine Vu, Pharm.D, Department of Pharmacy Services, Cedars-Sinai Medical Center 
Assembling Your Medical Records/Seeking a Second Opinion 
Megan E. Clowse, MD, MPH, Rheumatology and Immunology, Duke University
Carol Langford, MD, MHS, Director, Cleveland Clinic Center for Vasculitis Care and Research 
Lung Issues for the Vasculitis Patient (asthma, chronic breathlessness, respiratory infections) Ulrich Specks, MD, Division of Pulmonary and Critical Care, Mayo Clinic
Vasculitis Spanish Language Session 
Luis Felipe Flores-Suárez, MD, Head, Primary Systemic Vasculitides Clinic, Instituto Nacional de Enfermedades Respiratorias 
Building a Team:  Patient and Physician Communication 
Sharon Chung, MD, Division of Rheumatology, University of California - San Francisco
Grace Eisen, RN, Lake City, Michigan, VF Board of Directors 
Eyes in Vasculitis (inflammatory eye disease, low vision, cataracts, glaucoma, eye health)James A. Garrity, MD, Department of Ophthalmology, Mayo Clinic 
Lung Issues for the Vasculitis Patient (asthma, chronic breathlessness, respiratory infections) 
Ulrich Specks, MD, Division of Pulmonary and Critical Care, Mayo Clinic 
Stress Management: Coping Skills and Strategies 
Lisa Graziano, MA, Executive Director, Prader-Willi California Foundation
Understanding Lab Tests for Patients with Vasculitis 
Patrick Nachman, MD, UNC Kidney Center, University of North Carolina - Chapel Hill 
Reproductive Health Issues for Women and Men with Vasculitis: Fertility and Pregnancy 
Megan Clowse, MD, MPH, Rheumatology and Immunology, Duke University
Getting Involved in Vasculitis Patient Advocacy 
Jane Dion, Founder and President, Churg Strauss Syndrome Association
Cassie Keane, President, Vasculitis Foundation Board of Directors
Cindy Webber, Co-Chair, Education and Awareness Council
 
Peripheral Neuropathy Associated with VasculitisAnnabel Wang, MD, Neurology, Neuromuscular Disorders, University of California - Irvine
 
Vasculitis Medication Review (dosing/toxicities)Kenneth Warrington, MD, Division of Rheumatology, Mayo Clinic Vasculitis: Possible mechanisms. Role of autoimmunityNabih I. Abdou, MD, PhD, FACP, Center for Rheumatic Disease and Allergy
Disability and Workplace Issues for Vasculitis Patients
TaMiko Crockett, Public Affairs Specialist, Tri Counties Area, Social Security Administration
Essie Landry, Public Affairs Specialist, Tri Counties Area, Social Security Administration

 
Group Discussions With Faculty 
Behcet's Disease, Henoch-Schönlein purpura, Kawasaki Disease 
Curry Koening, MD, MS, Division of Rheumatology, University of Utah
Philip Seo,
MD, Co-Director, The Johns Hopkins Vasculitis Center
 
Churg Strauss syndrome
Carol Langford, MD, MHS, Director, Cleveland Clinic Center for Vasculitis Care and Research
Ulrich Specks, MD, Division of Pulmonary and Critical Care, Mayo Clinic 
 
 
Giant cell arteritis (Temporal arteritis)/Takayasu's Arteritis Peter A. Merkel, MD, MPH, Director, Vasculitis Center, Boston University School of
Medicine
Cornelia Weyand, MD, Ph.D, Immunology and Rheumatology, Stanford University 

Microscopic polyangiitis
Sharon Chung, MD, Division of Rheumatology, University of California - San Francisco
Megan E. Clowse, MD, MPH, Rheumatology and Immunology, Duke University
Patrick Nachman, MD, UNC Kidney Center, University of North Carolina - Chapel Hill 

Pediatrics Andreas Reiff, MD, Head, Division of Rheumatology, Childrens Hospital Los Angeles
David Balfe, MD, Medical Director, Pulmonary Stepdown Unit, Cedars-Sinai Medical Center 

Polyarteritis nodosa/Cryoglobulinemia Eric Hoy, Ph.D, MS, Department of Medical Laboratory Sciences, The University of Texas
Southwestern Medical Center
Ramnath Dukkipati, MD, Medical Director, Interventional Nephrology, Harbor-UCLA 

Wegener's granulomatosis
Nabih I. Abdou, MD, PhD, FACP, Center for Rheumatic Disease and Allergy
James A. Garrity, MD, Department of Ophthalmology, Mayo Clinic
Robert S. Lebovics, MD, Otolaryngology/Head & Neck Surgery, St. Roosevelt Hospital
Paul A. Monach, MD, PhD, Vasculitis Center, Boston University School of Medicine 

 
 
And That's Not All!
Keynote Address: Vasculitis - Where We've Been, Where We're Headed Gary S. Hoffman, MD, MS, Director of Senior Staff Matters, Professional Staff Affairs Office, Cleveland Clinic 
 
Disease-Specific Round Table Discussion Sessions 
Moderators: VF Education and Awareness Council 
 
Young Adults Icebreaker (ages 16-25, patients only) 
Moderator:  Kim Golbuff, MBA
Motivational Presentation: Don't Stop Short of YOUR Miracle
Julie Garton-Good, DREI, C-CREC, Port Saint Lucie, Florida
 
Disease Group Dinners
To be announced 
 
 
Have Some Fun! 
 
All Star Recognition, Celebration Banquet and Hollywood Walk of Fame! Tonight we're putting on sequins, tiaras, glitter and glitz and celebrating! Join us on the VF red carpet for an evening of food, fun and entertainment. Participate in the costume contest and win a prize. Experience the paparazzi and adoring fans. Come as your favorite movie or TV star or TV doctor!  (Participation is completely voluntary! Come to have fun.)  
Long Beach and Southern California Attractions 
Over 100 area restaurants. Attractions include the Aquarium of the Pacific, the Queen Mary, Disneyland, Knotts Berry Farm, and Los Angeles. Plan some vacation fun while you are here.
 
 
Learn More and Register 
 
Please go to http://www.vasculitisfoundation.org/2010vasculitis-symposium for detailed information and to register. Seating is limited, please register as soon as possible. Registration fee includes Saturday and Sunday continental breakfast and lunch, Friday night dessert reception, Saturday night banquet, and daily refreshment breaks.

Saturday, June 5, 2010

NMVasculitis Meeting for June 2010 will be at The Range Cafe on Menaul

Our May meeting at the Hilton Cantina was great, because I got to meet with Dennis Wiita. We shared some stories and some "patient secrets" and talked about the upcoming 2010 Vasculitis Patient Symposium, among other things. Dennis is a really great guy and takes his condition in stride. When we met, he had been enjoying a stretch of pretty good days, so we wish that to continue. It is always a pleasure to spend time with Dennis.

The Cantina was okay, but not the cozy corner I am really looking for. So those present decided together that in June we are moving the meeting to The Range Cafe, located on Menaul just about a half block East of University.

Also, I will bring plenty of brochures. I hope lots of you will come and stock up for the summer. Take them to your doctors, to your hospital appointments, and share them with your friends and family. Many times, people only take one copy. Feel free to take a dozen, or more if you think you can share them to spread the word. I have plenty right now, and one of my goals is to get rid of them so they can be out there, doing their work of spreading awareness. Will you please help me? I look forward to seeing as many of you as can come to the June Meeting.

(Those of you who are out of town, let me know you are willing to help and I will mail some brochures to you.)

The Range cafe is a long time favorite place of mine, and I have held successful meetings there for other non-profit groups. So, I know it will be good. If it works out for NMVasculitis, then I would like to settle down here for a while and focus on encouraging more people to attend the meetings. If you do not want dinner, then just come have a drink and maybe a slice if pie. The pies at the Range Cafe are fresh and very good.

As always, the event starts at 6PM and lasts at least one hour, but can go longer if we are having a good time.

Range Cafe - 2200 Menaul Blvd. NE
The Range Café
2200 Menaul NE, Albuquerque, NM
(505) 888-1660

Serving breakfast, lunch and dinner, seven days a week, The Range serves ordinary food, made extraordinarily well. New Mexico favorites such as blue corn enchiladas, burritos and award winning huevos rancheros are offered along side classic American favorites like Tom's Meatloaf and Chicken Fried Steak. Our in-house bakery serves up some of the best desserts in town in an eclectic, family atmosphere. See our menu section for our complete listing of The Range family favorites.

Menus

MAP

Monday, May 17, 2010

May Meeting of NMVasculitis at the Hilton Cantina on University

Our next meeting will be held at 6PM this Thursday, May 20 at the Cantina Lounge in the Hilton Hotel. I believe they have some indoor and outdoor seating, which may work well with the summer months coming up. This venue is centrally located, and also close to the freeway so locals and out of towners alike should find it easy to get off at Menaul and get in there easily.


Cantina Lounge
Have a favorite beverage while enjoying a light snack under the blue skies of New Mexico. Lounge offers food specials and refreshing drinks in a tree-lined courtyard overlooking our pool. Local favorite.



La Cantina Menu

Location: Midtown/University
1901 University Blvd. N.E.
Albuquerque, NM 87102


Phone: (505) 884-2500
Toll Free: (800) 274-6835
Fax: (505) 880-1196


Days Open: Daily Monday - Sunday 2PM-11PM
Attire: Casual
Complimentary Wireless Internet
Website


This should be a welcome change as we had exhausted the menu at McAllisters after several months of staying in one place. I welcome you all to join us this coming Thursday!


Joseph Carpenter
Parent, daughter with CSS (DX March '08)

Email, Fax, Phone and Postal mail: http://www.nmvasculitis.org/Home/about-cnmvf/contact
Central NM Vasculitis Foundation Chapter - http://www.nmvasculitis.org
Vasculitis Foundation - http://www.vasculitisfoundation.org
Churg-Strauss Syndrome Association - http://www.cssassociation.org/

Mark Your Calendars for the 2010 All Star Vasculitis Patient Symposium - July 30-August 1, 2010
http://www.vasculitisfoundation.org/2010vasculitis-symposium

Tuesday, April 13, 2010

NMVasculitis April Meeting at McAllisters

Looks like we will keep the monthly meeting at McAllisters in Uptown this month.

Thursday, April 14th at 6PM.

I will be there. I hope to see you there as well. Come by and I will treat you to some sweet tea.

We can also discuss what this chapter will be able to accomplish for awareness week.

Come one come all to the Jellicle Ball... or something like that.

Details to the location on the Meetings page of the website.

: Joseph

Thursday, February 18, 2010

NMVasculitis February Chapter Meeting Tonight

There is a meeting schedule for tonight at 6PM, at McAllisters Deli.

However, due to another commitment, neither Meaghan or I will be able to attend.

Consider this meeting cancelled if you like, or go anyway and look around to meet new people on your own.

Worst case, you can have some dessert and enjoy yourself. You deserve a treat, don't you think so?

Since I accidentally held an extra meeting in January, I suppose I am still up to date.

More later. Gotta run.

Joseph Carpenter
Parent, daughter with CSS (DX March '08)

Central NM Vasculitis Foundation Chapter
See us on the web: http://www.nmvasculitis.org - http://www.vasculitisfoundation.org
Or, call Joseph Carpenter at (505) 255-1366 for more information.

Mark Your Calendars for Vasculitis Awareness Week - April 25 thru May 1, 2010 when we all come together for a single purpose -- to raise awareness.
https://www.vasculitisfoundation.org/teamvasculitis

Thursday, November 26, 2009

2010 Eyewitness New 4 Health Fair

Would anyone like to donate the $600 booth fee so our chapter can attend this event as an Exhibitor? See below.

Or, if 20 people donated $30, we could do an event like this and reach out to thousands of health conscious New Mexicans.

Would any of you patients, caregivers or friends be willing to volunteer your time to man the booth?

If not this year, then please consider this for next year.

Plan B:
You all should go to this event to learn about health resources in New Mexico. So....

If we cannot attend as Exhibitors this year, then I encourage all of you to go as attendees and wear your Vasculitis Foundation T-Shirts. If you know you are going, then come to the January meeting and I can give you one of the few older T-Shirts I have left, or you can purchase Awareness gear from the VF online store. Those proceeds benefit you indirectly, so don't be shy.

Try to engage some of these other organizations in a dialogue about vasculitis. Tell them about the local chapter and direct them to our local chapter website. Perhaps we can form more active partnerships with local organizations for the future, so our chapter gets invited to more events like this one. Or maybe we can start getting more press, when the media wants to write about health related issues.

BE PREPARED TO TALK ABOUT VASCULITIS EVERYWHERE YOU GO.

Joseph Carpenter
joseph@nmvasculitis.org
Parent, daughter with CSS (DX March '08)

Central NM Vasculitis Foundation Chapter
See us on the web: http://www.nmvasculitis.org - http://www.vasculitisfoundation.org
Or, call Joseph Carpenter at (505) 255-1366 for more information.


http://www.kob.com/article/10500/




Your Ticket to a Healthier Life!
You can be a part of the largest and most comprehensive Health Fair in New Mexico. We saw some 10,000 health-conscience New Mexicans attend the 2009 Eyewitness New 4 Health Fair and we are already expanding for 2010.
Our show hours are:
Saturday, January 23, 2010   9:00 a.m. - 5:00 p.m.
  Sunday, January 24, 2010   9:00 a.m. - 4:00 p.m.

Lujan Exhibit Hall at Expo New Mexico (State Fairgrounds)


As an Exhibitor you will receive:
 Choice of available 10' x 10' booth (100 square feet of exhibit space)
 Listing in the Eyewitness News 4 Health Fair Program
 One (1) 6' table, draped and skirted, and two (2) chairs
 Five (5) Exhibitor Badges for your staff working the event
 Five (5) Parking Passes for each of the two days of the event
 8' high draped back drop and 3' high draped side booth dividers

Total Investment: $550.00  + Sales Tax (6.875%)  = $587.81

$250 deposit per booth with application due by December 1, 2009.


How to apply:
1. - View the Booth Layout Map and choose your preferred booth location.

2. - Fill out the Application below and click "Send."

3. - A representative will contact you regarding payment.

For questions, you may contact Joan Lucas, Public Affairs Director, at (505) 764-2490 or jlucas@kob.com.